Body
Locked-in syndrome is a condition in which all voluntary muscles of the body are paralyzed, except for those that control eye movements. It can result from a stroke or other conditions. When due to a stroke, it is generally because the brainstem has been injured. The brainstem is part of the pathway that carries messages from the brain to the muscles and nervous system.
When locked-in syndrome is caused by a stroke, people can sometimes recover movement and ability. Because of the paralysis, however, it is common to have problems with breathing, coughing and swallowing. Some people will need a tube in the neck to help with breathing (tracheostomy). Others may need a tube for feeding or urination. These may be necessary only until function returns.
People with locked-in syndrome are alert and able to think even though they cannot move. Communication is possible by blinking the eyes ¨C for example blinking once means ¡°no¡± and gazing up means ¡°yes.¡±
The goals of rehabilitation for locked-in syndrome are: ability to sit and stand with assistance including ability to hold head up; use of a power chair initially with potential goals of walking with a device; improved communication with voice or technology; ability to swallow some or all food consistencies; simplification of medical care including removal of medical tubes.
Research has shown that people with locked-in syndrome who are part of rehabilitation programs report a good quality of life, even if they do not return to ¡°normal.¡± This is especially true if the individual can return home, move about in the community and join in family activities.
The Shirley Ryan Ä¢¹½ÊÓƵÍøÕ¾ has a dedicated team that understands the challenges faced by people with locked-in syndrome and their families. Expert medical care, exercise therapy, customized equipment and the latest technology are all used to help achieve the best possible recovery and function.
